About Us
OUR FAMILY
Alissa and Curt Johnson are the proud parents of Nate and Louisa Johnson. They reside in New Jersey with Lulu's beloved dogs Mattie and May.
Alissa Johnson, MA, Co-Founder and Advisor
Alissa is the Principal Consultant at Johnson Policy Consulting, which she established in 2008. Prior to starting her business, she was a Program Principal with the National Conference of State Legislatures' Health Program. She is a Co-Founding Member of the National Alliance for PANS/PANDAS Action (NAPPA).
Curt Johnson, CPA, Co-Founder and Advisor
Curt serves as Chief Financial Officer of Private Equity operations at York Capital Management. Prior to joining York, he was the Director of Capital Markets at CapitalSource, Inc. and a Manager for PricewaterhouseCoopers LLP.
See our annual year in review to learn more about our WORK.
2024 Year in Review
Our 2024 Year in Review Newsletter is now available. Thank you to our amazing donors, researchers and partners advocating for those suffering from complex, chronic illness for making these accomplishments possible.
Read our 2023 Newsletter: News and View for the Year Ahead
Download PDFContact us
Reach out to The Louisa Adelynn Johnson Fund for Complex Disease with questions regarding public policy, for support to patients and families suffering from PANS, POTS and comorbid conditions, and to learn more about our work. We look forward to hearing from you.
The Louisa Adelynn Johnson Fund for Complex Disease
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