ThankS to our Donors FOr MAKING THIS POSSIBLE
MARCH 2024: The Louisa Adelynn Johnson Fund for Complex Disease is pleased to announce its contribution to The Alex Manfull Fund (TAMF), which will support the work of Dr. Lauren Breithaupt, PhD, Assistant Professor of Psychiatry at Massachusetts General Hospital. With support from TAMF and a contribution from the Neuroimmune Foundation, a biostatistician will analyze the data from targeted proteome sequencing of PANS/PANDAS patients conducted by Dr. Breithaupt in an effort to identify biomarkers associated with PANS and PANDAS.
JUNE 2023: The Louisa Adelynn Johnson Fund for Complex Disease is pleased to announce its partnership with the Neuroimmune Foundation to fund the first year of a fellowship at UCSF. Dr. Greer Waldrop will begin next week using the Neuroinflammatory Diseases Cohort at UCSF (currently >2500 patients) to identify shared clinical features and outcomes related factors in this large cohort of patients with encephalitis, meningitis and post-infectious neuroinflammation. The cohort, under collection at UCSF for 10 years since it was started by Dr. Michael Wilson and Dr. Joseph DeRisi, includes many groups of patients with autoimmune encephalitis, infectious meningoencephalitis, paraneoplastic neurologic disorders and post-infectious neuroinflammation. The cohort also is comprised of many sub-cohorts of patients with specific underlying disorders that predispose to neuroinflammation. Dr. Waldrop will utilize her extensive epidemiologic and clinical expertise to identify features that are critically associated with outcomes, responses to therapy and underlying etiology.
FEBRUARY 2023: The Louisa Adelynn Johnson Fund for Complex Disease awarded its first grant of $92, 500 to Stanford's Immune Behavioral Health Clinic. Researchers will utilize the funds to initiate studies on siblings of PANS cases, with a portion having POTS. Both disorders profoundly affected Louisa’s quality of life, and she would be very grateful to our generous donors as are we.
