Policy briefs summarizing state legislative activity and the role of policymakers in improving the lives of those suffering from PANS and PANDAS are available below. For legislation introduced during 2025 state legislative sessions, please click on the button.
The State of PANS and PANDAS Policy in 2024
Read our policy brief published in August 2024 for the National Conference of State Legislatures' Summit in Louisville. Please note since publication, the state of California enacted a law requiring health insurance coverage for the treatment of PANS and PANDAS, making it the 12th state to do so.
Improving the Lives of Patients with Neuroimmune Disorders
This policy brief was prepared in conjunction with the Neuroimmune Foundation and The Alex Manfull Fund to share with state legislators and legislative staff at the National Conference of State Legislatures 2023 Legislative Summit.
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Copyright © 2025 The Louisa Adelynn Johnson Fund for Complex Disease - All Rights Reserved.
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