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    • Our Series: Hard Truths
    • PUBLIC POLICY
    • GRANT AWARDS
    • DONATE
    • About Us
    • Contact Us
  • Home
  • Our Series: Hard Truths
  • PUBLIC POLICY
  • GRANT AWARDS
  • DONATE
  • About Us
  • Contact Us
New Jersey Capitol, our home state
Image: New Jersey Capitol, Our Home State

STATE PUBLIC POLICY: PANS AND PANDAS

Policy briefs summarizing state legislative activity and the role of policymakers in improving the lives of those suffering from PANS and PANDAS are available below. For measures introduced during 2025 state legislative sessions, please click on the button and check back for weekly updates. 

2025 State Legislative Activity

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The State of PANS and PANDAS Policy in 2024

Read our policy brief published in August 2024 for the National Conference of State Legislatures' Summit in Louisville. Please note since publication, the states of California and Virginia enacted laws requiring health insurance coverage for the treatment of PANS and PANDAS, bringing the total number of states to do so to 13. 

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RESOURCES

Improving the Lives of Patients with Neuroimmune Disorders

This policy brief was prepared in conjunction with the Neuroimmune Foundation and The Alex Manfull Fund to share with state legislators and legislative staff at the National Conference of State Legislatures 2023 Legislative Summit. 

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PLEASE SUPPORT Our Cause

Your donation will support critical scientific research studies seeking to improve the lives of patients like Lulu and their families. For online donations using a credit card, please click on the button below. Any donation amount will help us make a difference. Thank you!

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Copyright © 2025 The Louisa Adelynn Johnson Fund for Complex Disease - All Rights Reserved.

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