The Louisa Adelynn Johnson Fund for Complex Disease provides funding to aid scientific research endeavors.

Following the heartbreaking loss of their daughter, Alissa and Curt Johnson established The Louisa Adelynn Johnson Fund For Complex Disease to support the efforts of researchers studying the conditions from which Louisa suffered, including dysautonomia/Postural Orthostatic Tachycardia Syndrome (POTS),  neuroimmune disease and other comorbidities. At the age of 11, complex, chronic illness dramatically altered the life of Louisa, known affectionately as "Lulu" to friends and family, overnight. She endured a horrific medical journey for two and a half years before her death that no person, least of all a child, should experience.

Lulu had a passion for learning, particularly creative writing, math and science. She had many interests and talents, including dancing, singing, songwriting, music, theater, and caring for her beloved dogs (Mattie and May). She shared a remarkable closeness with her older brother Nate, and Nate's friendship along with her dogs brought her comfort through life and during her battle with chronic illness. Lulu exhibited an incredible drive to learn more about the world around her, and she aspired to become a physician and advocate for patients like herself. 

Through The Louisa Adelynn Johnson Fund for Complex Disease, we hope to advocate on Lulu's behalf and help to advance scientific research and, in turn, the medical community's understanding of complex disease. With your support, the fund  will provide grants to conduct vital research studies at major academic institutions currently investigating these conditions. Research projects on such complex conditions often is underfunded or, as in the case of the inflammatory brain disorders PANS and PANDAS, receive limited federal funding--a major source of support for scientific research in the United States. Your contribution will pave the way toward better treatments and quality of life for children like Lulu.