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    • Home
    • Our Series: Hard Truths
    • PUBLIC POLICY
    • GRANT AWARDS
    • DONATE
    • About Us
    • Contact Us
  • Home
  • Our Series: Hard Truths
  • PUBLIC POLICY
  • GRANT AWARDS
  • DONATE
  • About Us
  • Contact Us

If you are new to our series, please begin reading with our first story at the bottom of the page.

HARD TRUTHS

In our series, Hard Truths: How the Health Care System Treats Complex, Chronically Ill Children, on Lulu’s behalf, we share her experiences — ranging from difficult to excruciating and often traumatic — through the lens of a caregiver and mother, incorporating Lulu’s sentiments expressed to family and in writing whenever possible.  We hope that by sharing her story, others may learn from the challenges that she faced and have greater compassion for those who continue to suffer similarly.  

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PLEASE SUPPORT Our Cause

Your donation will support critical scientific research studies seeking to improve the lives of patients like Lulu and their families. For online donations using a credit card, please click on the button below. Any donation amount will help us make a difference. Thank you!

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Copyright © 2025 The Louisa Adelynn Johnson Fund for Complex Disease - All Rights Reserved.

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