If you are new to our series, please begin reading with our first story at the bottom of the page.

In our series, Hard Truths: How the Health Care System Treats Complex, Chronically Ill Children, on Lulu’s behalf, we share her experiences — ranging from difficult to excruciating and often traumatic — through the lens of a caregiver and mother, incorporating Lulu’s sentiments expressed to family and in writing whenever possible.  We hope that by sharing her story, others may learn from the challenges that she faced and have greater compassion for those who continue to suffer similarly.