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ACTION ALERT - DeCember 9, 2025

Please Contact Two Committee Chairs As Soon as Possible

Please Contact Two Committee Chairs As Soon as Possible

Please Contact Two Committee Chairs As Soon as Possible

New Jersey residents, please join our urgent call to action. Assembly Bill 5325 (A5325) and Senate Bill 4444 (S4444) to require insurance coverage for the treatment of PANS and PANDAS are pending in the Assembly Financial Institutions and Insurance Committee and Senate Commerce Committee, respectively.  We are asking New Jersey residents to please contact the offices of the committee Chairs to request the committee's consideration and favorable report of A5325 and S4444 out these committees so that they can move forward in the legislative process.


Details are provided regarding the pending legislation to the right, including two email templates (one for each committee chair), which you can easily personalize.  

Assembly Bill 5325 (A5325)

Please Contact Two Committee Chairs As Soon as Possible

Please Contact Two Committee Chairs As Soon as Possible

Please contact the office of Assembly Financial and Institutions and Insurance (AFI) Committee Chair, Assemblyman Roy Freiman, to express the urgent need for the passage of A5325, which requires insurance coverage for the treatment of devastating neuroimmune conditions PANS and PANDAS. Please kindly request that the AFI Committee consider and report A5325 out of the committee so that the bill can move forward in the legislative process.  Please note that the passage of this bill would provide much needed relief to affected New Jersey children and families. 


You can contact Assemblyman Freiman's office to convey this request by phone at (908) 829-4191 or email asmfreiman@njleg.org For ease, please feel free to use our email template addressed to Chair Freiman and personalize. 


If you are a constituent living in Assemblyman Freiman's district, please be sure to share that as well. If you are unsure of your district, please visit the New Jersey Legislature and enter your address to find your district. 

Senate Bill 4444 (S4444)

Please Contact Two Committee Chairs As Soon as Possible

Senate Bill 4444 (S4444)

Please contact the office of Senate Commerce Committee Chair, Senator Joseph Lagana, to express the urgent need for the passage of S4444, which requires insurance coverage for the treatment of devastating neuroimmune conditions PANS and PANDAS. Please kindly request that the committee consider and report S4444 out of the Commerce Committee so that the bill can move forward in the legislative process.  Please note that the passage of this bill would provide much needed relief to affected New Jersey children and families. 


You can contact Senator Lagana's office to convey this request by phone at (201) 576-9199 or email SenLagana@njleg.org For ease, please feel free to use our email template addressed to Chair Lagana and personalize. 


If you are a constituent living in Senator Lagana's district, please be sure to share that as well. If you are unsure of your district, please visit the New Jersey Legislature and enter your address to find your district. 

NJ RESIDENTS - PLEASE JOIN US IN OUR ADVOCACY EFFORTS

TWO BILLS ARE PENDING IN THE NEW JERSEY STATE LEGISLATURE

Patients, families, friends and loved ones of children and young adults suffering from devastating conditions PANS and PANDAS need your help. Two bills, Assembly Bill 5325 and Senate Bill 4444, are currently pending in the New Jersey state legislature. If these bills become law, New Jersey will join 15 other states that require health insurance plans to provide coverage for the treatment of PANS and PANDAS. These measures will reduce insurance coverage denials of prescribed medications which cause delays in access to critical, medically necessary treatment. 


How can you help? Please take a few minutes out of your day to:


✅ Contact your two Assembly members and one Senator representing your district. Please ask them to support Assembly Bill 5325 (when contacting Assembly members) and Senate Bill 4444 (when contacting Senators)  to require health insurance coverage for the treatment of PANS and PANDAS and consider becoming a co-sponsor of these bills. 


☎️💻 Just three calls or emails per person could make a huge difference in the lives of New Jersey children and families if we work collectively. We are so grateful for your help!  You can find email addresses for your state legislators here. 


For details and further instructions about contacting your legislators, please visit ASPIRE or email ajohnson@policyconsult.com with questions or to join our email list. 

Thank you!

Copyright © 2025 The Louisa Adelynn Johnson Fund for Complex Disease - All Rights Reserved.

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